POS0070-PARE CAREGIVER BURDEN AMONG IDIOPATHIC INFLAMMATORY MYOPATHY (IIM) CAREGIVERS

Background Idiopathic inflammatory myopathies (IIMs) often lead to severe impairments in quality-of-life related physical and emotional burdens. While the healthcare delivery burden patients with specific types of IIMs has been explored [1] , little is known about caregivers‘ burden, especially rare diseses. [2] Objectives Myositis Support Understanding (MSU), a non-profit patient-led advocacy organization for IIMs, distributed survey its members better understand caregiver burden. The aim this study was evaluate association between by IIM subtype factors that impact wellbeing. Methods Data Source: An anonymous via RedCAP MSU worldwide. A total 120 caregivers (age range: 30-89) responded over course 4 weeks. Survey : Demographic, diagnostic information, disease duration data collected from participants their caregivers. Zarit Burden Interview (ZBI), validated instrument diverse range caregivers, used determine testing domains including health, mental well-being, personal relationships, overload, social support, home environment [3] . Statistical analysis Pearson chi-square test performed assess caregiving, myositis type, age on well-being Regression also conducted identify risk increased Significance set at p<0.05. Results Most were responsible care inclusion body (IBM, 64%) followed dermatomyositis (DM, 22 %). Caregivers reported 74% under had moderate difficulties mobility required help some or most time. 102 completed ZBI: mild 44%, 25%, 4% There high degree least severity IBM (33%), DM (25%), polymyositis (25%). Conclusion face evident IBM. positively correlated an inflection time 6 years, thereafter impacted include strain, family life, role loss control one‘s life. Insights can create coping strategies References [1]Christopher-Stine L, Wan GJ, Kelly W, McGowan M, Bostic R, Reed ML. Patient-reported flare symptoms are associated disability, productivity loss, resource use. J Manag Care Spec Pharm. 2020 Nov;26(11):1424-1433. [2]Yang, G., Cintina, I., Pariser, A. et al. national economic United States 2019. Orphanet Rare Dis 17 163 (2022). https://doi.org/10.1186/s13023-022-02299-5 [3]Bachner, Y. & O’Rourke, N. (2007). Reliability generalization responses providers Interview, Aging Mental Health, 11 (6), 678-685. DOI: 10.1080/13607860701529965 Acknowledgements: NIL. Disclosure Interests None Declared.